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罕见病专场 Rare Diseases

2021-12-12 星期日

14:35-15:55 | 罕见病专场 下午 Rare Diseases(p.m.)
编号 时间 类型 题目 讲者
1 14:35-14:40 版块致辞

版块负责人讲话

李秋
Welcome Speech

Session Chair Speech

Qiu Li
2 14:40-15:00 专题发言

脂肪肾:是一种古老疾病的新概念

Xiongzhong Ruan
Symposium

Fatty Kidney:a new concept for an old disease

Xiongzhong Ruan
3 15:00-15:20 专题发言

肺发育和先天性呼吸道疾病

Wei SHI
Symposium

Lung Development and Congenital Respiratory Diseases

Wei SHI
4 15:20-15:40 专题发言

小儿神经系统罕见疾病精准治疗的现状与进展

吴晔
Symposium

Current status and progress of precision therapy for rear neurological disease in children

Ye Wu
5 15:40-15:55 讨论点评

讨论

Comment

Discussion

Xiongzhong Ruan Chongqing Medical University / Wei SHI Children’s Hospital Los Angeles and Keck School of Medicine, USC / Ye Wu Peking University First Hospital / Qiu Li Children's Hospital affiliated with Chongqing Medical University / Jianhua Mao Children's Hospital affiliated with Zhejiang University Medical College
16:05-17:20 | 罕见病专场 下午 Rare Diseases(p.m.)
编号 时间 类型 题目 讲者
1 16:05-16:25 专题发言

我们所了解的香港罕见病情况

Brian Chung
Symposium

Rare disease in Hong Kong - what have we learnt so far

Brian Chung
2 16:25-16:45 专题发言

真实世界数据(RWD)在罕见病中的应用

Xin SUN
Symposium

Use of real world data for rare diseases:the cases for drug regulatory decisions

Xin SUN
3 16:45-17:05 专题发言

如何制定罕见病的循证临床实践指南

Yaolong Chen
Symposium

Evidence-based approach to clinical practice guideline development for rare diseases in children

Yaolong Chen
4 17:05-17:20 讨论点评

讨论

Comment

Discussion

Brian Chuang Department of Paediatrics, Prince of Wales Hospital, The Chinese University of Hong Kong / Xin SUN Sichuan University / Yaolong Chen Lanzhou University / Enmei Liu Children's Hospital affiliated with Chongqing Medical University / Mo Wang Children’s Hospital of Chongqing Medical University