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- 2021-12-11 [星期六]
- 2021-12-12 [星期日]
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- 大会主旨发言 Plenary
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- 口头报告专场1&3 Oral Presentation1&3
- 口头报告专场2 Oral Presentation 2
罕见病专场 Rare Diseases
2021-12-12 星期日
14:35-15:55
| 罕见病专场 下午 Rare Diseases（p.m.)
| 编号 | 时间 | 类型 | 题目 | 讲者 | |
|---|---|---|---|---|---|
| 1 | 14:35-14:40 | 版块致辞 |
版块负责人讲话 |
李 秋 | |
| Welcome Speech |
Session Chair Speech |
Qiu Li | |||
| 2 | 14:40-15:00 | 专题发言 |
脂肪肾：是一种古老疾病的新概念 |
Xiongzhong Ruan | |
| Symposium |
Fatty Kidney：a new concept for an old disease |
Xiongzhong Ruan | |||
| 3 | 15:00-15:20 | 专题发言 |
肺发育和先天性呼吸道疾病 |
Wei SHI | |
| Symposium |
Lung Development and Congenital Respiratory Diseases |
Wei SHI | |||
| 4 | 15:20-15:40 | 专题发言 |
小儿神经系统罕见疾病精准治疗的现状与进展 |
吴 晔 | |
| Symposium |
Current status and progress of precision therapy for rear neurological disease in children |
Ye Wu | |||
| 5 | 15:40-15:55 | 讨论点评 |
讨论 |
||
| Comment |
Discussion
Xiongzhong Ruan
Chongqing Medical University
Wei SHI Children’s Hospital Los Angeles and Keck School of Medicine, USC Ye Wu Peking University First Hospital Qiu Li Children's Hospital affiliated with Chongqing Medical University Jianhua Mao Children's Hospital affiliated with Zhejiang University Medical College |
||||
16:05-17:20
| 罕见病专场 下午 Rare Diseases（p.m.)
| 编号 | 时间 | 类型 | 题目 | 讲者 | |
|---|---|---|---|---|---|
| 1 | 16:05-16:25 | 专题发言 |
我们所了解的香港罕见病情况 |
Brian Chung | |
| Symposium |
Rare disease in Hong Kong - what have we learnt so far |
Brian Chung | |||
| 2 | 16:25-16:45 | 专题发言 |
真实世界数据（RWD）在罕见病中的应用 |
Xin SUN | |
| Symposium |
Use of real world data for rare diseases：the cases for drug regulatory decisions |
Xin SUN | |||
| 3 | 16:45-17:05 | 专题发言 |
如何制定罕见病的循证临床实践指南 |
Yaolong Chen | |
| Symposium |
Evidence-based approach to clinical practice guideline development for rare diseases in children |
Yaolong Chen | |||
| 4 | 17:05-17:20 | 讨论点评 |
讨论 |
||
| Comment |
Discussion
Brian Chuang
Department of Paediatrics, Prince of Wales Hospital, The Chinese University of Hong Kong
Xin SUN Sichuan University Yaolong Chen Lanzhou University Enmei Liu Children's Hospital affiliated with Chongqing Medical University Mo Wang Children’s Hospital of Chongqing Medical University |
||||
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